Aiirrow!

I know, I know: I didn’t hand in my bloggy homework. But the dog ate my internet! Thanks probably to our notoriously fault-prone landline, I dropped to 9 (nine!) kbps bandwidth. And when it speeded up a bit, I promptly had a serious, life-threatening bout of ennui; yadda yadda yadda I’m here now, m’kay?

I have re-read my last post. It was not precisely overloaded with narrative sense, and I am pedantic enough to have a need to explain further. Harry tugged his balloon free by accident, watched it fly half-way across the car-park, and said ‘Uh-oh!’ to tell me what had happened. I saw the balloon but didn’t realise it was his balloon, made up some spurious little balloonless boy for the purposes of my life-suckage lecture, realising only at the very end that Harry’s balloon had flown away. It was his balloon all along.

Doh. This is the sort of minor tragedy you get a plethora of when you have a little boy who can’t talk to you.

Yet.

I no longer lie awake in the pit of the night worrying that Harry will never talk. Since the end of April, when he first blurted out ‘Bye’, and particularly since early June, when he and I triumphed together in his hard-fought-for ‘Mum!’, he has been steadily acquiring more spoken language – and every new word is a jewel and a delight to me. I do worry absolutely plenty about the immaturity and clarity of Harry’s speech: when – or even whether - he will pronounce ‘normally’ and not start nearly every sound with a D/T hybrid that ends with an ‘uss’ variant. How long it will take him to speak in sentences. When – or even if – he will cease to struggle to arrange his words.

I do particularly worry about all the sounds (awfully important sounds) that, aged 3 whole years old, Harry hasn’t learned to make at all. K. J. CH. P. F. G. Q. V. EE. (That’s the first time I’ve sat and listed all his vocal ‘can’ts’, and I’m now chewing my lip. Didn’t realise there were quite that many.) And the words I have completely failed to teach him, even when he already uses the constituent syllables often. The word ‘No’ is a good example of this last: he can say ‘Nan’ and ‘Oh’ perfectly well, but when gently encouraged to copy my ‘No’, he can only say ‘Nan’.

But these are merely anxieties. Elephant-sized anxieties, admittedly, concealing plenty of misgivings underneath them, but they are, importantly, not the cold clouds of panic and out-and-out fear that parked themselves overhead for so long. I no longer worry he will be utterly voiceless.

Harry’s words, few as they are, make such a very profound difference to us all. For starters, every time I hear a recognisable word from his mouth, there is a gleam of sunshine from somewhere directly above my head; it’s a particularly warm beam of light when the word is ‘Mum’.

He has, this last couple of weeks, began to sing a tune that is a very recognisable excerpt from ‘Wheels on the Bus’. It only has one (varies day to day) syllable in the lyrics, but do we have a proper melody with several notes. He has now officially outstripped his father in musical vocal accomplishment.

Harry is touchingly proud of, and pleased with, his words. I can’t really discern to what extent Harry realises that he has a problem with speech – the chatter and questions that give an insight into the Dr Seuss-like world of a child’s mind are, of course, absent in the enigma that is Harry - but I think the issue in general doesn’t concern him overly. He is simply delighted with the fact that he can express himself in this exciting new fashion, and as his words become more entrenched in his vocab, he stops using the corresponding Makaton sign. 

Unfamiliar children - and occasionally adults - can be quite perturbed by the lack of speech in Harry’s social interactions, and we have the odd encounter and subsequent explanation that upsets me when we are out and about, but by and large his 2nd-centile 88cm height and unsteady run has worked in our favour, as the overall effect is for him to appear rather younger than he actually is.

Harry’s vague and excitable Makaton (his core communication language) can often be frustratingly hard to interpret, which lends his spoken words even more critical importance. The status quo is in daily flux – he learnt ‘Yes’ two days ago, and it is now in hourly, useful use; just as nodding was when he learnt the trick of that back in January. Hence I’ve compiled a list – I like lists – to remind me in later years just where we were today.

Speech

Mum – ‘Murm’

Dad – ‘Dairt’

Nan – ‘Nnan’

There – ‘Dere’

There it is – ‘Dere E tis’

Yes – ‘Yesss’

Bye – ‘Burr-bai’

Hello – ‘Aiirrow’

‘Bugger! Broke it!’ – ‘Uh-oh!’

WE know what he means

Two – ‘Terr’

Green – ‘Deeen’

Red – ‘Rare’

Juice – ‘Deuuce’

Geese – ‘Diesss’

Bus – ‘Dus’

Please – ‘Deease’

Impressions

Cow – ‘Muurmm’

Sheep – ‘Baaare’

Train – ‘Tsu-tsoo’

Ambulance/Fire/Police – ‘Eee-ah-Eee-ah’

Horse - Clip-clop noise

Clock - Tick-tock noise 

Sleeping – Snoring noise. It’s awesome.

Makaton signs.

Colours - Green, Orange, Blue, Yellow, Brown, Black, Orange, White.

Animals - Dog, rabbit, crocodile, bird, tortoise, fish, butterfly, (Lion/Tiger/Dinosaur – identical roar & pounce!)

Transport – Tractor, combine, crane, digger, train, helicopter, aeroplane, bike, (car/bus/truck – identical).

Food – Apple, chocolate, bread, sweeties, cake, biscuit, ice cream, drink, juice.

Outside -  Tree, flower, wind, rain, grass, waves, snow.

I am -  hungry, cold, hot, sad, scared, angry, naughty, excited, hurt, all done.

People - Dad, Mum, Nan, Grandad, ‘J’, ‘T’, ‘R’, Mr Tumble, ‘self’, Harry, baby.

Things I do - shower, bath, tooth-brushing, telephone, storybook, painting, kite.

Misc – Please, Thank-you, bye, help, bad, good, love, sleep, hear, yes, no.

Moviemaker Hates Me. I Hate Codecs.

Six hours I have sweated to bring you this short magnum opus. Six!

It’s Been Emotional

HARRY IS SAYING ‘BYE’!

That is all.

You’ll Never Know, Dear, How Much I Love You

Last night, I stayed up until nearly dawn writing a report that was 5 times longer than I’d originally envised it, detailing Harry’s… quirks… for his new nursery staff at School Fabulous (© May). I’m hoping his more adorable qualities will become self-evident to them, because I haven’t had space to talk about those. It’s… kinda long.

John and I took him to meet the staff there today (he banged his head three times in 30 minutes). There are four nursery staff, and currently only 3 other children doing afternoon sessions, one of whom we already know. It is, you will not be surprised to hear, a special school, catering for children aged 2 to 19, all of whom have special educational needs.

School Fabulous is a pretty cool place. Sensory garden, light room, soft play centre, hydrotherapy pool, huge indoor sand pit, areas for every type of play I can think of, and a playground strewn with Exciting Stuff. There are speech therapists, physiotherapists, nurses and nursing assistants, all visiting on-site.

The school is well-known throughout our county, as… THE special school. How can I put this? There’s a lot of parking for wheelchairs. There’s lots of kids wearing head protectors. When I tell friends who haven’t heard about Harry’s lack of speech that he is starting there, they all look mildly horrified and blurt out a variation on ’Why, what’s wrong with him?’ before hastily re-modelling their faces into Kind Concern and I’mSureHe’llComeOnVeryWell fervent nodding.

What I feel about that generally depends on how much I like the friend.

What I feel about his admission, following a panel meeting, is huge, profound relief. I sat and wept writing my long, pitifully long list of the things that Harry does that, taken as a whole, make him such a challenge to parent. I’d never held the collective weight of every single one of our difficulties in my mind before then, and I’d not realised quite how many minor troubling issues I had been hoping he would grow out of.

Whih is absurd, really, because Harry is making very discernable progress, if not in his actual speech, then certainly in his communication. Either his comprehension of our speech has taken a  leap forward, or his newly-acquired skill of nodding has motivated him to integrate with us more – perhaps both.

This morning, on a whim, I asked him to say the word ‘Tesco’ (Yeah, yeah, I know. Of all the words to pick. We were outside!). And he tried! He’s never mimicked a sound on request in his entire life. I think he either hasn’t hitherto understood what ‘say’ (i.e. ‘Harry say it’) meant, or his brain just can’t retrieve and reproduce memorised speech-sounds accurately yet. Again, probably both. I’d most likely have had no luck had I asked him to mimic any sound except T or D, which letters begin most of his babble, but he definitely sat there having a go at repeating ‘Te…Te…Te’ after me. 

I floated into the shop. Which was some achievement considering the scales registered an all-time personal worst for me this morning – why, yes, that does include pregnancy OMFGlalalalaHalpHalpHalplookattheprettyweather. Looking on the bright side (I will, consequently, have to move out of the way of the GODDAMNED SUN) I have re-joined my old gym, and will shortly be gymming and swimming Tuesday, Wednesday and Thursday afternoons while Harry is in his new nursery, just around the corner. My health, sadly, desperately needs these 7.5 hours a week devoted to improving its host.

I am planning to keep him at our local mainstream nursery on Friday mornings, and extend his session over lunchtime. We will be financially better off all-told, as his new nursery place is fully funded on account of his specific need, and I will be paid a mileage allowance for taking him there.

Which brings me to the only part of this that makes me really bite my lip and think about the whole Holland thing again. I don’t have to take him myself if I don’t want to: Harry is entitled to free transport there and back, as it is a needs-based placement. Although I would not even remotely consider the option at present, the school would arrange to deliver him door to door.

In their – short – Sunshine bus.

To Infinity and Beyond

I had the shittiest dream last night. I dreamt I was pregnant in the same uterus Harry was in – the uterus I now think of very firmly as the blood-deprived, factory-of-doom, Wrong One To Use. It has been cramping and spotting again lately in its usual will-I-won’t-I-wait-until-you-get-into-the-swimming-pool fashion, plus I have a vague viral thing that has settled joyously upon my weakened form and issued orders for Dizzyness and Mild Nausea: stat, so there was a reasonable physiological subtext for my brain to have Bad Fun with.

I remember feeling frozen cold in fear and so absolutely convinced that the pregnancy would be another oxygen-deprived how-much-brain-damage? nightmare –  that I was actually considering an early termination rather than play another months-long game of Russian Roulette: Choking the Fetus.

(When I woke up, I realised that that part was actually true. That’s how much I distrust Cameron, my right uterus. She is never to be given another child of mine to house. I awoke in an actual waking panic, having dream-connected the Nausea and Twanging Cameron and shot out of bed towards my peestick stash like a wild-eyed, snaggle-haired, ungainly cannonball.

I never thought I’d see a time where I was truly glad to get a single line. Life: you are bloody strange.)

My dreams are no more logical than anyone else’s: despite being panicked and horrified about the location, I was also aware that I had a scan and blood test tomorrow to see if the baby was still alive – and I was desperately hoping that it would all be ok. Contradictory much, yeah yeah yeah. The fear was gut-wrenching and miserably upsetting: I was trying not to cry whilst I was frantically wrenching the correct pee-stick from its bag, dancing from foot to foot because A) snow-cold, unheated bathroom and B) large mug of tea just before bedtime.  

My brain hasn’t thrown these sort of night-time bricks at me for years – they stopped right about the time they changed to NICU-horrors, oddly enough. I’d forgotten the exact nature of the torment, the excruciating uncertainty of waiting for the next appointment. I’ve remembered now, this weekend, because my darling, deserving friend May is sat squarely, again, in that Place of Fetal Uncertainty. It is a spiky, needle-strewn chair, with a ground glass cushion.

Tomorrow morning, she and H will collapse Zombryo’s wave function and see if and where there is life, death, or further zombryonicity in Schrodinger’s uterus. 

Either way: she will need much in the way of virtual cuddling and I shall be away on holiday, so I am handing y’all (What? What? I have American family. I have American friends. I read American blogs. I’m Entitled. If she won’t use proper English then neither shall I, so there.) the banners reading ‘Cautious Rejoicing & Temporary Exhaling!’ and ‘Stop All The Clocks’ for you to take over there and display as appropriate while I am gone.

 Her blog is considerably better-written than mine: you will like it.

My preparations for tomorrow’s departure consist of packing a basket full of illicit sugary consumables – partly with the intention of indulging ourselves, and partly in the hope of shamelessly bribing Harry into good behaviour -  and sorting Mount Laundry

into its respective drawers. It’s 9pm. I should now go and pack, or something.

It’s been nearly a year (caravan excepted) since we last took Harry away, and I’m hoping he’ll settle better at night than he did last February. He is (this week, at any rate. It will All Change with his next cold virus) sleeping through for 12 hours, no bother. He learnt to jettison his Grobag so has spent the last week sleeping successfully with a toddler duvet. John and I are currently chewing tensely on the issue of moving him into a toddler bed, as he is perfectly capable of vaulting out of his cotbed – greedy boards notwithstanding – now his legs are free. 

He swiftly gets bored with the books we plant in the hope of delaying him and generally briskly completely disrobes on waking. If we don’t get in there sharp-ish in the morning, there is not only a giggling na.ked tod.dler (the google searchers who necessitate my fullstops will burn a long time downstairs, I hope) bouncing gleefully up and down, but a large puddle on the mattress to boot. The potty, incidentally, is going… badly. Not ready.

There’s not a cat in hell’s chance of him staying meekly in any bed without bars yet: he’s simply not old, placid or mature enough and I have the devil of a job getting him to stay on the sofa to nap every day. There’s several weeks/months of shitty-awful sleep involved in moving a toddler of Harry’s disposition to a open bed – and once it’s attempted, we can’t go back. Harry has Views on withdrawal of privileges: if he’s had or done something new once, then case precedent has been firmly set and he will throw heaven and earth about in a rage until he is allowed to do it again. So in summary: it’s a damn shame he’s in proper danger of hurting himself by falling out, because the bugger really needs to sleep in there for the foreseeable.

Of course, we could better the odds by providing something like these

   

to render Staying The Fuck Put a little more alluring, but there’s a wee problem with that, to wit: I blew well over a grand – our entire baby budget – just on nursery furniture for Harry’s room.

I bludgeoned John into making this purchase of QUALITY, SOLID ELEGANT OAK  (Fer the love o’God, don’t tell him they’ve just reduced it by 10%. I keep having to reassure him about the resale value) by telling him that it would totally last until Harry is 5 and then we could have another 8 children who would all use it too and it’d be a heirloom for all of them and then I would use it as a day bed and if we have the cot bed then we really have to have the beautiful changing unit as well or it’ll look odd on its own and oh look the changer top comes off so it can be our chest of drawers afterwards and I really really love the gently flared design it’s so stylish and we’re only going to ever have one child so it needs to be absolutely perfect because I deserve it after all the shit we’ve had and OMG look the blanket box has got little teddies sat on it and there’s squeee more inside we have to have one of those as well it’s the most gorgeous thing ever and OW the baby just kicked I think he really likes it I think I’ll just sit down on this glider chair here that I really love as well and rub my bump obviously in a pleading fashion whilst you peer in foaming disbelief at the price tags and mutter.

He bought the furniture. My Nan bought the glider. My parents bought the pushchair/carseat. I am a spoilt middle-class cow. If I suggest buying another bed he’ll want to murder me… but the man does like to sleep…

It’s bloody cold in this office and I’ve had no supper yet, but I have to log that Harry has continued to do New Stuff this week, or later, I won’t have the foggiest clue when it happened, and it’s important to me that I remember the When for some reason.

He has built on last week’s Nodding triumph (it is now in hourly, useful, exciting use) and used it to facilitate Abstract Questions. Formerly, Harry has only been able indicate a Yes/No to specific ‘do you want to: do [this]/eat [this]/go to [here]‘ questions. He has been utterly bemused by any other question apart from ‘where is [actual object]‘ to which he will point in response. Ask Harry if he wants food: you get a yes. Ask him if he likes his food/has eaten his food/has dropped his food/his food is hot and you get a blank, uncomprehending stare. It’s a communication wall of iron.

Yesterday morning, I asked him if he had done a poo in his nappy? 

And he nodded.

Now, I knew it was there: I have a nose. I know he knew it was there - if I’d asked him (as I often do) to point to the poo, he will cheerfully point to his own rump before leading me in a Benny Hill chase around the furniture, as he hates nappy changes. He has never responded like that before, and my streaming eyes were not purely down to what he had to declare in the turd department.

Yesterday afternoon, John accidently caught Harry’s nose on the zip of his jumper: because Harry was tired and crotchety he cried. I knelt down and asked, as I have for many many fruitless months (often several times a day, too) where his hurt was? and shook my hand in the ‘hurt’ makaton sign. This time – he pointed sadly to his nose.

Yesterday evening, John and I were pratting about and chasing each other around the kitchen island – over the last bottle of Heineken lager, in fact. Harry was gurgling with laughter and joining in, when he slipped over and banged his head on the kitchen cupboard. I cuddled him, and asked him where his hurt was? He pointed to the exact bit of head I’d seen him bash. The iron wall is definitely beginning to crumble a little. Knowing which bit of your child is causing the pain is pretty key. Not having a clue where to look has hitherto caused me much grief.

I asked him later on if he had been tobogganing with Daddy, and he nodded. (He had). I asked him if he liked tobogganing, and he nodded. I’m not completely sold on how much he understood the completed action/active liking element to my words because he was giving at least 50% of his attention to Timmy Time at that exact moment, but it was certainly progress from tuning me out completely. The current professional opinion on Harry is that he has a listening and attention disorder with sensory oddities. Some noises upset him. Some noises he completely zones out. Some noises he is absurdly sensitive to. Paraphrasing his SALT report: he has difficulty following adult-led activity unless it is very high-interest or active, and prefers to follow his own play agenda. The challenge is to attract his focus for longer periods: when he pays more attention and listens to others better, then his speech should follow.

I can see him taking longer and longer steps away from his babyhood: I am pleased and pained. His babble sounds seem to me to be growing in scope and range. Shortly before Christmas he began to join in with me when I sang him carols in the car (a fine way to explore which carols you don’t actually know the second verses to, although you thought you did. I got mightily confused and started singing cut & shut hybrid carols instead; I fear the resulting lyrics gave a reasonably heretical impression.), making sounds that remarkably resembled his father’s two-note repertoire.

He won’t let anyone except John’s mother touch his hair. He has fallen deeply in love with Playdoh. He has possibly the biggest fleet of toy tractors outside of a retail environment and copies perfectly what he sees his father do with the real thing. He copies everything that he sees other children do: usually things I would prefer him not to notice. His proficiency at jigsaw puzzles is impressive and markedly in advance of his peers. He still loves feeding his toy animals, often from his own plate. He is a clambery, ants-in-his-pants, unco-operative arsehead when he is tired. He gives absolutely the best lap snuggles – with extra kisses – in Christendom. God, I love him. So, so much.

Taxi! The Cococabana!

Reasons to be happy:

  • Carry On Cleo is on TV. Infamy!
  • Harry has learnt to nod! We have actual nodding! Nodding to go alongside the shaking he learnt last (pause to peruse own archives) September. At the grand old age of 29 months he can now give a silent no AND yes – when he responds at all; his continuing speech delay, it turns out, is part of a wider listening and attention disorder. But… back to happy! Nodding! It’s a… strange nod, admittedly; it looks more like a slooooooow motion yoga move than a gesture, but it’s clear to see and he enjoys doing it.
  • Christmas has been put back in its box. It’s hard to say which experience I enjoy more: the festooning-with-holly-and-twinkly-lights festive gearing-up, or the get-back-in-your-bloody-box-coz-I-want-my-house-back-now winding down.
  • I tackled the heaps of near-sentient washing in our bedroom on Christmas Eve, so I am no longer obliged to groan and feel depressed by the morass that previously concealed 90% of the actual carpet. It was actually all clean – at least, it was, before it spent weeks on the floor – it just never made it as far as being folded and placed in the wardrobe. 50% of my share of the clothing  mountain was also too small for me; I would grab it, hold it to the light, scrutinise the label, and cast it impatiently back onto the tangled skeins of sleeves and legs. Annnnd I have sharply deviated away from subjects that please me. Clear floor! I have a clear floor! I can see my Laura Ashley rug again! The only one I own! Harry now has his brio train track all laid out on said floor – John and I spent a happy half-hour elbowing him imperiously out of the way while we re-visited our respective childhoods - and Brrrrrrmmms his trains around in the morning for 20 precious minutes or so, before remembering that he likes to bounce up and down on Mummy’s sleeping head.
  • I have booked a little holiday. On Monday 11th I am heading for Center Parcs for 4 nights, where I plan to ensconce myself with a good book on a deckchair in the 29.5 degree tropical dome, sipping something cool, while Harry & John splash about in the pool. Disconcertingly though, it seems John is planning on making me actually cycle places, and has just bought a bike carrier for the car. Sigh. But… 29 degrees! Wave machines! Flumes! Lagoon Bar!

A Tiger? In Africa?

First things first: a sincere and very humble thank you, thank you, thank you for your wonderful, unexpected, staggeringly generous support. I am truly bowled over by it.

I had thought maybe a handful of you might chuck in a couple of quid for a good cause and I would have been so delighted and appreciative had you done just that. As it was, I kept blinking at the screen in awe as the total kept going up; the fact that so many of you dug deep into your credit-crunched pockets has left me stupefied, touched and grateful beyond words. I cried so many bloody pints, in fact, I couldn’t shift the resulting headache until yesterday. As of this evening, the grand total http://www.justgiving.com/DarthToddler stands at £751, and the gift aid (tax relief) Bliss can reclaim on our direct donation of the £261 raised via the coffee morning, will send the effective value well over £800.

Bless you, internets.

(BTW, UK readers might like to consider Bliss’s lovely Christmas cards. If you are a knitter, there is something else you can do, too: knit some breasts.)

I’m still not in my usual mental place about cake (deep and fervent desire, generally) and I was fair buggered after it all on Sunday. John, with a forbearance he does not usually exhibit, let me sleep in until 10am without muttering under his breath OR inflicting Harry – a bouncy, morning toddler – on me. He didn’t even moan much when I disappeared, grinning broadly, to the Hobbycraft show at the NEC, although it was absurdly, tiresomely crowded and the queues for coffee were daunting; after an hour or so of employing the wifey Elbow into unyielding backs I was beginning to feel a bit limp about things again. I even fell asleep in front of the TV, which is almost unheard of – and followed it up with a night of insomnia, which isn’t.

And since then my arse has not stopped scurrying dementedly about, because this is, work-wise, the busiest month of my year. I attempted to combine parenting with work this morning: my post natal group (which, for want of a suitable collective noun, I term the Piddle) meet at the local playbarn on Wednesday mornings, and I thought, as Harry generally scuttles about the playframe by himself – much like a hamster on speed - while I latte-up and wave from the ground, that I could arrange a regular stationery-selling gig there, and still take him with me. The playbarn agreed, so this morning I saw him bustle off to play alongside the rest of the Piddle toddlers, and had no sooner begun unpacking my boxes of Christmas cards when a friend appeared at my side.

‘I realise this isn’t what you want to hear right now, but Harry’s filled his nappy. It… errr… reeks!

Ohhhhh. Nice!

Gave friend cash tin to guard. Captured protesting child before he could spread it about any further. Inserted him in arms of another friend who had unwisely strayed too close. Galloped outside and extracted nappy bag from car. Reclaimed child. Carted yammering child to changing rooms. Recoiled in dismay from diarrhoea-y output. Noted glumly that vest was heavily… compromised. Trousers, thankfully, escaped with mere light staining, which I pretended not to notice, due to absence of any alternatives. Changed impatient child. Double-bagged shitty vest. Noted sore bottom. Rummaged through bag for barrier cream, unsuccessfully. Cursed. Unleashed clean child back into main area. Returned to unpacking cards.

A few minutes later I am still head-down, arranging, when a lady I have never seen before in my life approaches, holding Harry by the hand. He is wearing … Christ! … just his nappy and t-shirt, and she is holding his trousers.

‘Excuse me! Is this your son?’

‘Oh God.’

She took this for assent.

‘He was running about happily at the bottom of the big slide, but his trousers were sat half-way up it!’

I managed to splutter something about thanks, made reasonably incoherent by shame. The Piddle were all wetting themselves – ha ha - and Harry was firmly shepherded into the toddler section where they could keep an eye on him for me. Work/Motherhood FAIL. Thankfully he forgot about his trouser-removing mood, but later duly proceeded to have more diarrhoea, necessitating another lengthy trip to the changing room. I was worried about him rubbing his little bottom raw, but repeated enquiries about ‘Home?’ all met with a determined nolle prosequi and it was gone lunchtime before I brought him home for a late nap on the sofa, nappy off, legs sprawled and bum slathered in barrier cream.

His portage visitor is coming in the morning and I am guiltily aware that both cramming in more work than normal and the weekend’s frantic activity have meant that we have not done our piano practice, so to speak. His portage worker is puzzled by Harry, as are we all. He seems such a bright little boy in some respects, yet there are some fundamentals that he still isn’t grasping at all. He can answer a question regarding his own wants easily, but cannot grasp anything more abstract.

For instance: although he can give a firm and clear affirmative to ‘Would you like some grapes?’ he cannot grasp the meaning of ‘Have you finished your grapes? Are the grapes all gone?’ It’s not that he has no personal gain or motivational interest in answering an abstract question per se, or even that he doesn’t understand the meaning of the individual words, because he does - it’s just that there’s no comprehension there at all. He listens to my words, but remains impassive, clueless on how to respond, or even that a response is required. Yet if I ask him to give me one, two or three kisses, he wheel-spins towards me happily to plant the appropriate number of smackers on my lips.

His communication is slowly, imperceptibly improving. His proto-words and phrases are becoming more consistent and although he still does not have a single clear word he is sometimes easy to interpret; one of the playbarn ladies who rescued his trousers (pause to wince and mourn my maternal pride) assured me she had asked him where his Mummy was and understood his response. (I expect she got ’Daretiss!’ (‘There it is’) with an enthusiastic gesture to back it up.)

His gains are so gradual that I’ve had some panicky days about it again lately. His default babble-noun currently is ‘Tayzass’. Everything is bloody Tayzass, all day long. He  has expanded on the ubiquitous Muuurrrrmmm! and his repertoire of animal sounds now includes piggy-snorts, horsey clip-clops (with jiggly rein hand-gestures), sheep baas (glotteral throat-coughs that sound like a machine gun with a terminal blockage) and tiger, complete with a lovely little RrroOAaaaWWRrr and pouncey-paws. I get regaled with the Snorty-oinks, the Muuurrmmm, the Ack-Ack-Ack-Ack-baaas and the clippety-clop sounds pretty regularly from the back seat as we drive around Warwickshire – and his hawk-eye spots a tiny specimen 4 fields away. Tiger-roars from the back seat are, reassuringly, reasonably infrequent.

I have only just now realised (go me! but Yay for the constructive thought-process that is blogging) that his effortless recognition of large numbers of Makaton signs coupled with his indistinct, confused and highly limited use of them, precisely mirrors his difficulties with spoken communication. His understanding of speech is entirely age-appropriate - everyone thinks, bar the reservations over his puzzling comprehension-gaps - but his speech output is currently still fairly banjaxed. He only uses the signs for ‘ice-cream’, ‘more’ and ‘please’ pro-actively, although he uses those plenty and often. Are you getting a cupboard-love theme coming through, here?

I had a fair few people who caught sight of him beetling happily around, a beaming centre of attention, at the coffee morning, later ask me breezily about his speech - in the obvious expectation that I would have news of his suddenly starting to speak in sentences, Just Like Their Neighbour’s Cousin’s Stepbrother’s Friend’s Kid They Cited To Confidently Reassure Me last time I encountered them. And I found myself taking no pains at all to let them down gently - or give them much of a leg-up out of the subsequent conversational hole they found themselves in - when I answered that No, no speech and next stop: Psychology & Brain Scan. Which was undoubtedly uncharacteristically unkind of me, particularly as they had dutifully tipped up to give me some money, but I’ve been feeling rather angst-ridden about Harry’s future lately and its been spilling out around the edges of my Politeness containment field. We saw the little girl who is Harry’s direct contemporary this evening, and she is suddenly three inches taller, spouting huge sentences, jumping with staggering co-ordination and rolling the skittle ball like a bowling pro.

And to think I was revoltingly smug because Harry could sit up and walk first! I know, I know, I know: he’ll probably catch up, and the fact that she’s obviously developmentally surged ahead of him shouldn’t get to me, but it really bloody has. Despite everyone’s best efforts he is still struggling against difficulties with both his body and his brain – and the more I feel like this, the more I feel that I really want that MRI, for the bringing of either reassurance or answers.

And And And And my period is now well into its third sodding week, and getting heavier and more aggravating by the day. My hair needs cutting. My gym membership has run out. I have lost no weight at all. My eyes will no longer accept my contact lenses, and I detest wearing glasses. The gastro thing I kept moaning about so often earlier in the year is still happening, I just got tired of whinging about it continually. I am woken up at erratic intervals, always and without exception between the hours of 2am and 4am, by a 3 or 4 hour bout of debilitating upper abdominal pain. Drs best guess is endometriosis, ulcer or – mostly likely, given the symptoms, but least likely given that prodding my gallbladder doesn’t make me yelp – gallstones. I am currently on anti-acid thingies, with the additional instruction to eat a thoroughly greasy curry and see if it brings on an attack.

I’m too… ummm… chicken to do it.

That is all, as it is nearly 2am and I can think of nothing else to whinge about just at present.

Thank you so very very much, again, for your marvellous support of sick, small and premature babies – and of me.

To borrow the phrase of a dear friend: I appreciate the fuck out of you.

Rock, meet Hard Place.

It’s not been a cheery day, so let’s start things off with a nice little photo. John was Harry’s whipping boy Nominated Parent on Sunday, so I kicked back and relaxed by re-arranging my kitchen cupboards. This is almost everything I found that was out of date, often by an impressive 4 or 5 years. (Feel quite free to be Topper and comfort me, BTW.)

cupboard contents

We will now take a brief moment, in which everyone who has ever eaten a meal in my house, bloggers among them, can quietly disappear to throw up absolutely everything they have ever consumed.

Better?

The predominance of seeds is as a result of John’s brief fad of being a baker: we have been married 6 years in March and received a bread maker as a wedding present. Hubby got all keen and baked a number of really quite edible loaves, buying in large stocks of pumpkin, poppy and sesame seeds. Then he lost all interest; the packets have been gathering dust ever since.

Our garden birds did very nicely out of it all on Sunday, particularly as I also found a pack of lard (out of sight and mind at the top of the fridge) with a date of January 2009. Yum.

If Harry survives his childhood without falling victim to Campylobacter, E-coli or Salmonella, then he will one day look back on his formative years – these years – and form an opinion on whether I make a bad or good decision this week, and I’m wriggling uncomfortably on the pointy horns of a daycare dilemma. If you have clever advice - or amusing assvice – for me, I will give it my close attention and gratitude.

Harry currently receives Portage, a weekly home-visiting education service for pre-schoolers with additional support needs. Harry’s home visitor has undoubtedly assisted him: by following her suggestions and games, Harry has certainly come to understand the concept of taking turns, after only a handful of visits. Putting the theory into practice outside a controlled home environment has been uphill work for the lad, but she has helped improve his communication. She’s the closest thing he has to a key worker, and liaises – theoretically – with:

Physiotherapy: his Wobbles assessment is – finally – Thursday morning. I am grimly prepared to get Harry drunk and suddenly stick my foot out in front of him if he refuses to fall over for her.

Speech and Language Therapy: achingly slow progress. ‘Djess’ has, depressingly, sunk slowly back into the formless quicksand of his babble, and Harry, at 26 months and 82cms, is once again officially Wordless. He is progressing with his language; his eye contact is significantly better and his signing is coming along nicely this week – he has learnt to sign ‘hand it over now, woman’ ‘please’ - but he’s still desperately behind, and I sometimes get twisted up inside with panic and anger and OMFG I CAN’T UNDERSTAND A SINGLE DAMN THING YOU’RE BABBLING ABOUT AND I HAVE NO FUCKING IDEA WHAT YOU’RE POINTING AT AND YOU’RE LOOKING AT ME LIKE I’M THE KNOWER OF ALL THINGS OR YOUR BLOODY MOTHER OR SOMETHING  BUT YOU DON’T REALISE I SIMPLY DON’T UNDERSTAND THE FIRST THING YOU’RE SAYING AND I CAN’T HELP YOU I CAN’T HELP YOU BECAUSE IT’S ALL JUST RANDOM SOUNDS AND MY HEART IS BREAKING.

And… yeah. That’s generally the time you’ll find me howling in a corner. Even the most determinedly awful mother would find it hard to purposefully not intelligently respond to any single word her child said to her for an entire year – but that’s exactly what I’ve done, in effect. I worry about the damage to his personality this incomprehension causes; Harry doesn’t know that he isn’t intelligible.

Harry’s behaviour, unsurprisingly, is heading downhill quicker than the shares I bought for him with his child trust fund and they’re pretty damned precipitous. The baby groups we go to are beginning to fall silent when he launches into one of his Specials – particularly when I’ve just stopped him hitting another child, so he starts violently attacking himself instead. Eventually, when I’ve either restored some sort of calm, or simply clamped his raging form hard under my arm and announced our departure, one of them will carefully clear their throat, blinking and ask ’Bad day? Is he really tired?’

Yes, all of them currently, and No, he’s just woken up.  And I’ve cried every day this week because when he headbutts me and I don’t dodge in time it really bloody hurts and my nose bleeds and I bruise and I’m tired of fighting my poor angry child and looking useless.

Cough. I was supposed to be telling you about daycare. Yes. Daycare!

Harry is no longer Cool with his 2 mornings at Local nursery. I don’t entirely blame him: last time he went, Mummy didn’t come home for 2 days. I took him Friday morning and he kicked off in such spectacular fashion at the gate that I eventually had to take him home again. John cycled past it yesterday and asked Harry if he liked the place: he shook his head. Ahhh. Bugger.

A friend in the local village runs a playgroup called, let’s say, Abacus - albeit the parents leave the children there – for children with special needs. I am only just coming around to the fact that Harry is, in fact, one of those children. The labelled, different ones. Special Needs. Statemented. Exceptional. StrugglingI know we didn’t get off the plane in Italy, but I’ve never been entirely convinced we were really making a stop in Holland, either, until – well, today, I suppose. I suppose I was thinking of us as being more… western Germany?

But we toddled along this morning, as it was a friend and she’d invited us to come take a look. (Harry promptly lost his mind with anxiety as soon as he saw it was a daycare centre, which bodes badly for me and his usual Local drop-off tomorrow.) There were 7 kids and 6 adults: the ratio is usually about one to one, sometimes even more adults than children, depending on the need. (The staff at Local daycare take Harry’s difficulties seriously and are keen to help him, but the ratio is 1:4 kids.) There was a ducky little lad with what appeared to be mild Downs, and another kid who was using a mobility frame, although he could also wobble along unassisted. The remaining children were all language impaired to a greater or lesser degree, but no other issues that I could see. I’m told there are usually between 6 and 10 children attending a session, a couple of whom are very severely functionally impaired, but the majority are simply language delayed.

It wasn’t the most inviting-looking building in the world, dark and old (in a bad way; we’re not talking Tudor here) although with a lovely garden attached, turfed throughout, with no hard edges and a smallish selection of nice toys.

They asked me, in the course of finding out about our history, if I had ever applied for disability living allowance for Harry. I sprayed my coffee in most ecumenial fashion over everyone in the vicinity, near and far. Say WHAT, now? *Splutters* He’s cognitively spot-on, people! Even a little ahead of his age! But… yes. Apparently, the level of agency involvement with Harry is a fair indicator that we could quite likely qualify for the lower level of state disability payment. It’s about £18 a week and would cover the lion’s share of his daycare costs but… there’s that D word again. It does insist on cropping up and I am never, ever suitably prepared for it.

The activities were fabulously well-aimed for kids like Harry in… Holland. They used makaton and visual aids for absolutely everything and kept the kids’ attention beautifully. (Harry blatantly thinks circle time at Local daycare sucks a clown’s balls and it’s generally his cue to slope off outside on his own.) A speech therapist comes nearly every week and they have regular physio, occupational therapy and paediatrician input too. Although Harry was actually climbing determinedly up the fire doors for most of the activity-time in a frantic effort to get outside and play, I know that once he settled in he would derive infinite benefit from their one-on-one approach. It’s run by a superlatively trustworthy friend, it’s breathtakingly cheap, it’s exactly what Harry needs – and of course, there are mighty snags.

Abacus is probably 10 miles away, in a town and on an estate I used to live in and have darkly unhappy memories of. The sessions are only 2.5 hours long, and even though it’s only a piddling £3 an hour, it’d barely be worth, in fuel and time, me coming back home.

Harry’ Local daycare is 2 miles away, attached to the primary school that Harry will – I am currently assuming - attend. John went to school there. They have more toys and are the Italy to Abacus’s Holland.  We really wanted Harry to become accustomed to Local place this year, so that pre-school in a year’s time did not come as a shock – if he actually ends up attending Italian mainstream pre-school. I like Local place, and so does Harry when he’s not in the throes of major separation anxiety.

Simple! I hear you cry, bored and desperate for coffee stimulation by now. Send him to both! 2 sessions at Local, 2 sessions at Abacus. Blow the budget and you’re sorted!

Yeah. If Harry exceeds 2 daycare sessions a week, he loses Portage services. Sending him for one session in both places is half-arsed and not considered a good idea by Local, Abacus OR Portage - who are unhappy and apologetic about the recent reduction in the cutoff level from 5 sessions to 3. We have to choose between the three of them.

If I cut Local out and instead spend 2 or 3 mornings marooned in a random coffee shop near Abacus… I’m not only sad on my own account, because I like Harry going to Local but it also means that I’m taking several steps backwards organisationally and will be more behind and stressed than ever; Housework: Nil, Business: Nil, Time To Self: Nil.

If I don’t send him to Abacus, then… well, I can’t do that. I have to send him to Abacus. As it’s just over the county border, I am considering asking them to keep Harry’s presence there a Big Administrative Secret, but I think in practical terms it’d be like concealing a secret airbase: people do tend to notice the odd jet flying in and out. Plus there’s paperwork and stuff.

If I send him to both Local and Abacus and lose Portage, then we’ve lost a weekly visitor to our home – no fuel! no travel! no stress! fun games! all positives! - who has demonstrably done Harry some good. I value her input a good deal.

Crap. Arse. It’s got to be Local for the choppy-chop, hasn’t it?

Bloody rules. We are not amused.

A Bargain Assortment of Bads and Goods

I’m sat here deciding whether to compare myself to a busy bee, an army ant or a blue-arsed fly. Whatever. You get the picture: me, insect, scary hybrid, yes?

My exoskeleton bum has not touched the ground much. I have actually got going properly with my cards since returning from that thing I loosely termed a holiday, and have finally turned over my first thousand quid. This is money I can keep all to myself!  must share with the Inland Revenue  must give to John, who pays my credit card  must use to pay Harry’s nursery fees will never actually see, but it’s highly satisfying to have my own funds in my wallet, nevertheless. John keeps asking hopefully when he can retire.

Tomorrow afternoon we are off to hear how desperate – or not – my FSH levels and all my other assorted bloodwork gubbins are. I am taking my ultrasound report: the bad one. I think it’ll either be cameras or knives next. Bring ‘em on.

Harry has passed his exams, bought a car, left home and got married since I last posted. Or… something very much approximating to it, anyway.

I have explained here before that Harry, in addition to a walloping great speech delay, has a further communication block with the concept of ‘Yes’ or ‘No’. He can’t say the words, does not understand what nodding means, and has only recently begun to shake his head occasionally, when he wants to emphatically and imperiously reject something actually being physically held out towards him.

Over the last couple of weeks John and I both felt that his understanding had moved up a gear; that, in subtle and indefinable ways, he was much more au courant with our conversations and activities. On a hunch, I crouched in front of him last Sunday evening, gained his eye contact and spoke up clearly:

‘Harry! Yes or No? Would you like an ice cream?’

‘DJESS!’

Cue much, much jollity. I wasn’t sure he’d do it again, but he has, he has, he totally bloody well has, every day since, although not quite yet every time. Sometimes the word isn’t recognisably a ‘yes’ - it can default to ‘dat!’ or ‘giss!’ but that’s not so important in the scheme of things. Even more encouragingly, a day or so afterwards he began to shake his head in response to spoken concept choices. Predictably, the first instance of his demonstrating this was our asking him if he would like to go to bed; there was an icy, considering stare, followed by a determined shake. He promptly slithered off the sofa and beetled off at high speed to hide in the kitchen. John and I laughed like a pair of blocked drains, and he did, in fact, buy himself another 20 minutes of play time with that shake.

This is, obviously, several different and fetching shades of Complete Awesomeness.

He is still dribbling buckets and has his fingers permanently jammed in his mouth. I was convinced the dribble must be low muscle tone until I peered inside his mouth during naptime earlier today and found that 2 of his secondary molars were erupted – and obviously have been for quite a while – and the two remaining baby teeth are bulging at bright red and white gums. That’d be a Maternal Observation for Dummies: Module One FAIL, then. 

I also spotted that this peculiarly yellow, calciferous-looking tooth

Harry tooth

harry tooth 2

has not improved any since the last time I had a squint at it. The rest are all pearly white and smooth, but this one popped out of the gum bright yellow and obviously has something strange going on. I know enamel irregularities are rather more common amongst premature children, but I don’t like the look of it  – or the sides of his rear tongue - much. I don’t expect it’s significant, but I’ll show it his Paed in any event.

What else? Ah, yes, physio. I wrote a stinking email to the head of Paediatric Physiotherapy, challenging their refusal to treat Harry if I supplemented his treatment with private care; I mentioned in passing his other professional care input. She rang me back to apologise for the ‘miscommunication’ and freely admitted she had not prioritised Harry: his Paediatrician’s referral had made no mention of the fact he also recieved Speech Therapy and Portage from the multi-disciplinary team, merely that his parents had concerns regarding his mobility. I knew this to be perfectly true – I have a copy of the referral - but I rather thought the fact that they do all work for the Integrated Disability Service was significant. She explained that the involvement of other professionals generally rang warning bells for them, and that Harry would now be seen within a fortnight. Result. Of course, if I had listened to John and asked Harry’s Portage key worker to hurry the physio referral along on our behalf, he’d have been seen a month or more ago. My bad.

In an entirely different Not Listening to Hubby (My Bad) episode: my friend had a old summerhouse she wanted rid of, which was the precise size and dimensions that I have been hankering after and scouring Ebay unsuccessfully for. We agreed on giving her £20 for it, and I booked Hubby + trailer + strong right arm to come and dismantle it from her garden last Wednesday.

John was dubious about the whole idea, and said so. He was excessively mentally scarred during a dilapidated greenhouse dismantle-and-reassemble project that his Mother talked him into, a decade or so back. John’s unprecedentedly savage response to the absolute piglet job she had landed him with (some of his muttering was, apparently and unusually, actually audible and decipherable) has remained the talk of the family ever since, and he has entered a firm nolle prosequi to assorted proposals of garden buildings removal ever since. I have, however, been banging on relentlessly about wanting a summerhouse for a couple of years, and we haven’t been able to afford so much as a dog kennel, so he cautiously agreed.

Readers, he was nasty to me when he saw it. Admittedly, it was rather more rotten than I realised and the roof was larger than the estimations I had given him by a factor of roughly 350%. He attacked it brutally with a crowbar, ignoring my yammering protests when aesthetic or vital bits splintered and ricocheted off in all directions. I kept a low profile for the rest of the day. I have no idea where it currently is: John drove down to the farm with an expression that indicated the only place he was considering parking the trailer was by the burning heap. I haven’t asked after its fate.

The day after that, John and I managed to miscommunicate badly, with the net result that he thought I was aware he had left Harry downstairs watching TV, and I was in the shower thinking Harry had gone with John to the farm. After 30 minutes of blissful leg-shaving-hair-drying-toenail-painting-me-time, during which I had been strangely puzzled by the odd thumps and bangs from (I presumed) our tortoise, given that we were supposedly alone together, I arrived downstairs to encounter - horrified - a totally naked small boy, a puddle of wee (these first two items are common encounters) a torn £50 note, a wallet emptied, plastic and coinage contents scattered to the winds, and a number of ‘don’t touch that, please, Harry!’ items where they shouldn’t have been. Our bad.

I have made jam.

The great jam massacre

Lots and lots and lots of jam, nearly all of it either under-or-over boiled. Damn you, £6 Lakeland jam-thermometer. Bloody thing. It tastes fine – I didn’t burn any of it this year, at least - but most of it needs bringing out of the jar with either a chisel or a spoon. I have 2kg of preserving sugar left, and probably ought to go and relieve the groaning trees of their plums – fnarr, fnarr – but I’m not sure I can face the inevitable jam carnage again.

I was going to do a post about dozens of things this week, and had time for none of them, but I want to write a little about about our local ploughing match, despite the fact that I was flustered (due to downstairs-alone-toddler) and took no camera - without which I can’t do the event justice. A shame, as it was held this year in fields perched high above the River Arrow valley with simply glorious views. There are proper, old-fashioned Bilbo-Baggins eleventy-first-party white marquees, built with huge centre poles and hemp-type guy ropes; men with ancient tractors roaring away industriously at their rich, dark, straw-scattered furrows 10 feet outside the marquees; the hedgelaying competitors turning a straggling, leggy length of centuries-old hedge into – well, I never quite understand how they judge hedgelaying sections, but it certainly looks neater when they’ve finished; the Shire horse pairs with their gleaming flanks, braided manes and tails, fluttering head plumes and polished show harness; the 100-year-old traction engine and threshing drum making an almighty racket as wiry old men feed armfuls of wheat into its maw, and honest-to-God agricultural types who turn up in tractors and battered 4x4s wearing a green-to-dun spectrum assortment of boiler suits, cotton checked shirts, boots, wellies, flat caps, waxed hats and Barbours, complete with a thick scattering of farmers’ wives, who bring splashes of pastels and bright pinks to the golden straw-stubbled field. There was a light breeze, scattered clouds, bright sun, a fresh smell of straw, liberally mixed with horse shit and tractor oil - and I was unusually and fabulously happy. I do love this event, even when it’s pissing down with rain. As I was, for the first time, working as opposed to visiting, I was inside a marquee selling cards with tractors on for most of the day, but I was by the door and could see over the main field and valley beyond. My Mum bought Harry along in the afternoon and he went potty with excitement over… just about everything. A good day. A really, really good day.

Speaking of which, Harry had a good time at nursery last week. I stayed with him for the Tuesday session, but he flew the nest alone on Thursday with barely a wobble when he saw I wasn’t staying. I bawled all the way home; he had a marvellous time. They are still getting used to his wobbles, and he came home with an – unmentioned – small red welt under his eye which later turned into a shiner, but that is unfortunately almost a bi-weekly event for Harry in any case. I’m not surprised they didn’t mention it, they won’t have noticed him do it. On Tuesday, I was asked by one of the junior staff if Harry’s tolerance to pain was ’like, insanely high’?

Sigh. Oh, he feels it, all right, luv. He’s just used to it.

He’s off again tomorrow morning, and I have the unaccustomed luxury of deciding what particular household or business activity I want to apply myself to. Last Thursday I had an order for a birthday cake to keep me (very) busily employed (fun to do if you can spare the time, but hugely unprofitable unless you charge a small fortune – and absolute murder on your back) (the first person to tell me that the Union Jack is missing some bits gets a poke in the bloggy eye. It was late, I was tired, I was aching, and John is still blinking);

Suitcase cake 1

Suitcase cake 2

but tomorrow I am free to choose what I do in my toddler-free slot. 

Reading with your feet up is a household activity, surely?

A holiday is what you take when you can’t take what you’ve been taking any longer

They say that a change is as good as a rest.

You do hear a lot of unmitigated bollocks*. It is emphatically not a rest. It is not remotely close to a rest. It is, pardon my vulgarity, exactly the same shit in a different toilet.

(Apropos, Harry, bless his 2nd percentile soul, generally shits like a Great Dane. His progress towards potty training consists of sporadically attempting to remove his nappy concurrent with urination or shrapnelling defecation, resulting stickily in catastrophic overflow.)

Harry slept in our caravan exactly as well as I expected him to: reasonably badly. Answering, as ever, to the name of Lucky, he rapidly acquired a sleep-annihilating cough, probably due to the spectacular pea-souper that thickly wreathed the so-called English Riviera for our first 2 days. (Not unusual. During a previous trip to the Minack

Minack

 I had marked difficulty in discerning the actors, and at no point saw the sea.) Harry was also difficult about his naps – too much new stuff to look at, mainly – so this, paired with poor night-time rest, resulted in a particularly prickly young pear.

Even though it is always Harry behaving like a monumental and complete arse, John and I, without fail, manage to blame one another for whatever family crisis of overwrought nerves Harry’s relentless, single-minded pursuit of trouble has landed us in. We are clever like that. Our bitter mutual castigation harmonises nicely with Harry’s ululating screams of inarticulate rage, and the juddering blows/protesting squeaks/sickening thuds from whatever unfortunate surroundings are currently suffering the full force of his directed fury.

I’m honestly not sure how much of Harry’s behaviour is a result of our joint genetic legacy, or his individual… lets call them… issues. I waver daily between fearing his behaviour is a pint-size, highly concentrated sample of our worst character flaws – or believing him to be simply a toddler with an iron will, an iron fist, an iron skull, a steely glare and sadly limited communication.

Be afraid. Be very afraid. Thwart this child at your bodily, mental and marital peril.

It is, I fear, only a matter of time before Harry breaks my nose with his furiously lunging skull; I never expected to receive my first Glasgow kiss from my son.

He still has no speech. Proto-words are emerging, sporadically, unreliably and slowly. He knows dozens of signs, but simply does not understand how to use them to communicate. I see 10 month old babies communicate more effectively than Harry, and my sadness for him – and for myself, truth be told – is profound. We will never be here again. I can’t redeem the time – too much time – that I spend exasperated, grappling, struggling, coaxing, crying, furious, swearing, persuading, embarrassed, manhandling, dejected, out of breath, really fucking annoyed… and beaten.

The beauteous Amy phrases it perfectly: ‘a meltdown at a playground is different for us, that it’s not the kind of meltdown *your kid* has, no it’s just NOT, that it’s like someone set our child on FIRE, that there’s no redirecting or soothing, there is only FLEEING.’

Come 6pm, I would rather face down a hungry bear** than cross my ferocious – fabulous - flailing little bundle of determination. I am sometimes asked if I think he might be somewhere on the autistic spectrum – to which I used to reply No. Lately, I say… I’m not sure. He is a social, smiling child (when things go well; by which I mean: his way) who seems to be growing away from some of his odder quirks (fear/anger at certain noises/frequencies, some texture aversion) but he remains, in ways, a strange child, and a challenging one. Until we break his communication log-jam, I – glumly – expect no improvement. 

He was not feeling or behaving his best this week, and we were fairly strained in consequence, but I didn’t set out to moan quite as much as I actually have here. I am, when you get right down to it – and not very far down, either – wholeheartedly and emotively thankful for every last one of my bruises. The sound of his giggles lifts me. I beam when he beams. The comical little ‘uuUMM!’ noise of interest, pleasure and surprise he makes when confronted with something new and deeply intriguing makes me radiate happiness. I would slowly disembowel myself with a spoon – a rusty one – if it saved him from pain.

Mind you, after about the 45th minute of doleful howling from the back seat in protest at his Wrongful Carseat Incarceration, muttering from the front seat, and with over 100 miles of motorway still to go – disembowelling myself sans anaesthesia began to seem like a comparatively attractive distraction.

But we did have fun, in between the squalls. Look! Smiles, and everything!

sea wall

sea wall 2 

slide

But not at the waves, which Harry is highly nervous of, possibly due to witnessing the severity of our disgusted recoil from the filthy foam topping the waves at Weston Super Mare a few weeks ago.

waves

John taught Harry a fascinating new game: putting large handfuls of cold, wet shingle down the ample Mummy-cleavage.

pebble cleavage pebble cleavage 2

Hubby seemed oddly vexed when we fed pebbles down into his jeans in reciprocation. Apparently they got wedged in his underwear.

Harry shot through most of Plymouth Aquarium like a bored torpedo, but he particularly liked the sharks, and is consequently now the proud owner of a foot-long cuddly specimen.

 Shark

 shark2

I did actually manage to get one of the five books I took read, although I had run my fingers through my hair so much (as a result of wall-to-tiny-fucking-wall Peppa sodding Pig. Now there’s a porcine family that needs sausagizing, stat.) that it began to look like an Old English Sheepdog crossed with Spinal Tap; I did well to make out the words at all.

Fiery cross

And now we are home: the laundry mountain is visible with Google Earth and Harry is sleeping beautifully again in his own cotbed.

He starts nursery on Tuesday.

We can’t actually afford to send him to nursery. Not even the two measly mornings that he is booked in for – but I can’t afford not to send him, either. He needs to be surrounded by more speech than ours, he needs to learn to share toys, he needs to learn not to hit, and he needs to become accustomed to the school site in which he will be educated until he is 11 years old. He will begin a hefty 5-half-days-a-week-all-or-nothing preschool there in a year’s time; the year after that… he will begin school proper, a whole year earlier than his conception date entitled him to expect.

And I need him to go, so, so badly. I need a kitchen that isn’t a continual heap of clutter, and a bedroom floor that isn’t a swirling morass of toppled laundry heaps interspersed with ankle-crippling lurking toys. I have a young business that I need to spend time growing – which reminds me in turn that I have a sadly neglected garden. My to-do list is, in fact, impossibly long for the 6 hours a week that I am consigning him to daycare for - but no matter.

I need to draw breath.

*often on this site

 **I have incidentally, faced down a bear, albeit a really rather titchy one. I was walking across a Lake Louise car park; I had yummy-smelling food and the bear was obviously keen to partake. But so was I: stony broke and hungry, I convulsively clutched my bag of goodies defensively and glared with all the venom I could muster. The bear, recognising a stiff fight when he saw it, obligingly buggered off. I heart food THAT MUCH.

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